Chris Aldred, the Grumpy Pumper

LIVINGLIVING

ACCIDENTAL ADVOCATE

Having had T1D for 25 years Aldred says he is not a patient

representative nor an expert patient (other than for his own diabetes).

He calls himself an 'accidental advocate'. Here he looks back at what

2019 involved for him in terms of travel, tech and giving talks.

P

ersonally 2019 has

been a good year for

me. Well, except for the

fact that I developed

a second foot ulcer,

though that's been clear for the last six

months. That's a whole other story. Oh,

and my son was diagnosed as also having

T1D too. That wasn't exactly one of my

hopes for the New Year when I welcomed

in 2019. But the family is coping with that.

This year saw some technology

changes for me. The demise of Lifescan

and its Animas insulin pump the year

before meant I had to change my insulin

pump and I started on the Tandem t:slim

pump in early 2018. This year brought

new software for the pump called Basal

IQ which, when used with a Dexcom

CGM sensor, meant the pump controlled

my basal rate on its own, stopping insulin

delivery if I was going low. I was sure that

just cutting off my basal when low would

not make much difference to me, but

I was wrong - so, so wrong! It worked

really well. I was impressed.

However, lows are not my main issue,

highs are. The next software update will

be to Control IQ, which will mean the

pump can add in insulin automatically

based on sensor readings when I am too

high. However, about half-way through

this year, as that was still a way off, l

decided to try a DIY system and started

'looping'. It's been very successful for me

and I plan to stay on this until Control IQ

becomes available in the UK later in 2020.

Being able to use these automated

systems is a matter of considerable

privilege. Diabetes tech of this level is

only available to a tiny minority of those

of us living with the condition. This is why

I have been pleased to see progress on

the availability of smart pens this year. This

has the potential to benefit a huge amount

of people with diabetes who manage their

diabetes with insulin, be they Type 1 or

Type 2.

TALK IT OUT

The majority of my year has been

advocating for change in the way we

talk about diabetes and its related

complications. Along with Renza

Scibilia I have spoken at many

conferences and events on the

subjects of #LanguageMatters and

#TalkAboutComplications and the

importance of removing the stigma that

can sometimes come with a diagnosis of

diabetes. We had an article published in

the British Medical Journal and have both

written extensively on this subject.

In May we visited Manila to run an

advocacy workshop for some truly

amazing young people. Hearing the

issues they have with some only being

able to afford one test strip per day was

truly humbling.

Index

  1. Free online Desang diabetes magazine diabetes information
  2. Dexcom CGM G6, continuous glucose monitoring
  3. Desang diabetes, magazine diabetes information, Sue Marshall diabetes
  4. Accu-Chek Insight insulin pump for Animas users
  5. Desang diabetes magazine diabetes news
  6. Desang diabetes magazine diabetes news
  7. Home test HbA1c, A1C Now Self-Check
  8. BD, Becton Dickinson, injection technique, BD pen needles
  9. BD, Becton Dickinson, injection technique, BD pen needles
  10. Abbott FreeStyle Libre glucose sensor
  11. Abbott FreeStyle Libre glucose sensor
  12. Association of British Clinical Diabetologists (ABCD), Diabetes Technology Network (DTN)
  13. Desang diabetes kitbags, Desang diabetes diaries
  14. Abbott FreeStyle Libre blood glucose sensor
  15. Omnipod Insulet insulin pump with insulin pods, podders
  16. Page 0016
  17. Page 0017
  18. Quality in Care (QiC) diabetes awards Sanofi, Dr Hilary Jones Type 1 diabetes
  19. Quality in Care (QiC) diabetes awards, Sanofi diabetes, Simon O'Neill Diabetes UK, Type 1 diabetes
  20. Quality in Care (QiC) diabetes awards, Sanofi diabetes, Type 1 diabetes
  21. Quality in Care (QiC) diabetes awards, Sanofi diabetes, Type 1 diabetes
  22. Quality in Care (QiC) diabetes awards, Sanofi diabetes, Type 1 diabetes
  23. Diabetes UK helpline
  24. Food news for people with diabetes, Waitrose
  25. Air Liquide Healthcare UK Tandem t:slim insulin pump with Basal IQ
  26. My Diabetes Kit Josh Malin Racing
  27. My Diabetes Kit Josh Malin racing
  28. My Diabetes Kit Josh Malin racing
  29. Insulin pump, Kaleido insulin pump, patch pump, ViCentra diabetes
  30. My Diabetes Kit Josh Malin racing
  31. Trividia Health UK True Metrix blood glucose monitoring (BGM)
  32. Desang Diabetes Magazine free to subscribe
  33. Desang Diabetes Magazine free to subscribe
  34. Chris Aldred, the Grumpy Pumper
  35. JDRF, INPUT, diabetes technology, access diabetes technology
  36. diabetes magazine, shaws of huddersfield chutneys
  37. diabetes magazine, shaws of huddersfield chutneys
  38. diabetes magazine, shaws of huddersfield chutneys
  39. Ascensia Contour Next One Diabetes blood test meters
  40. Desang Diabetes Magazine, Making Carbs Count
  41. Desang Diabetes Magazine, Making Carbs Count
  42. Desang Diabetes Magazine, Making Carbs Count, parma ham
  43. Insight insulin pump for Animas users
  44. Desang Diabetes Magazine free to subscribe

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