Diabetes management equipment, my diabetes kit, desang diabetes magazine

26

LIVINGLIVING

Moving on

But certainly not one to be stuck

in a groove, Johnson was due to go

back on the Accu-Chek Combo and

start doing DIY APS (do it yourself

artificial pancreas system), but he

says, "I went to a few events about

DIY APS and felt there was too much

mathematics in it for me. I met

various people, went to meetings

and felt that it really worked for

people who were happy to put the

work into it. I wasn't sure that I was.

Then I applied for Dexcom CGM but

couldn't get funding."

The Johnsons have two children,

a son and a daughter, who are both

now in their mid- to late-20s. Their

daughter, a doctor, works at St

Thomas' Hospital, London.

Remembers Johnson, "She came

back saying that the diabetes clinic

there was absolutely excellent.

I asked to be able to attend that

clinic and I went for a consultation

just before lockdown in 2020. I

was asked a series of questions

and given a score which indicated

whether I should or should use CGM

technology. I did qualify to use CGM

and they were very keen for me to

go on it, very keen to help. They also

suggested using an app called the

CamAPS; they wanted somebody

over 60 to try it out. Therefore, I

moved onto the Dana RS pump, onto

Dexcom G6 and the CamAPS app -

that's essentially an algorithm that

lets the bits of diabetes tech 'talk' to

each other."

Did Covid-19 get in the way? "I did

all of the training for these remotely

during lockdown," says Johnson, "By

20 July 2020 I got started on the

new system. It's been absolutely life

changing, it's another world. It's light

years ahead of other DIY systems

in my view. It is also attached to

Diasend so my wife can see my

readings, the clinic gets them too,

the consultant can check in on my

data anytime he wants."

How much work is this to use,

you may wonder. "The only thing

you need to do is tell the system that

and maintains good control, "In fact,"

says his dad, "He gets a bit hassled

when I try to advise him to try out

other systems, he's happy enough on

what he's got!"

So, nearly a year since going onto

the Dana RS pump, Dexcom G6 CGM

and CamAPS system, Johnson says, "I

still don't have great hypo awareness,

but it's quite funny - CamAPS has

a crying baby sound for when I get

below 3.9mmols/L, which certainly

grabs the attention, so I feel safe!"

RESOURCES

Dexcom (below)

www.dexcom.com

Dana pump

advancedtherapeutics.co.uk

CamAPS FX app

www.camdiab.com

you're about to have some carbs, is

called a 'carb announcement'. From

from that information, the system

suggests the bolus amount then

automatically gives it to you. It also

announces hypos too and will stop

the delivering insulin. It's dead easy

to use and anyone can follow it. I now

have a daily target of 4.9mmols/L.

The system aims to keep me at that

and as a result my HbA1c has come

down to 6.2mmols/L. I rarely have

spikes and I'm in range as much as

83% of the time. My wife says that

on this system I'm generally fitter

overall than I used to be, and that she

does not worry about me as much

as she used to. She also says that it's

transformed our lives, freed up the

family and that they are all thrilled

with it too."

Family ties

Keeping it in the family, Roy and

Fionnuala Johnson's son also

developed Type I diabetes, at the age

of 13 just like his father. He ended

up being 6'4" rugby player and a

barrister. He now uses an Accu-Chek

pump and a FreeStyle Libre sensor

Roy Johnson with his CamAPS app on his smartphone.

Index

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  9. Abbott Freestyle Libre 2, Flash Glucose Monitoring, FSL2, Abbott Wellness Factory
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  11. insulin pump, Dana RS system, artificial pancreas, Advanced Therapeutics UK, CamAPS FX, Dexcom G6
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  13. Medtrum A6 Touchcare patch pump and CGM in harmony
  14. Medtronic Penny App
  15. : Medtronic MiniMed 780G System Automated for an easier way to stabilise glucose levels.
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  17. NHS diabetes care
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  19. Air Liquide Healthcare UK Tandem t:slim insulin pump with Control IQ
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  27. Diabetes technology education from Diabetes Technology Network DTN
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  38. Desang Diabetes Magazine, Making Carbs Count, carbohydrate counting for diabetes
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  42. Free online Desang diabetes magazine diabetes information

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