Diabetes management equipment, my diabetes kit, desang diabetes magazine

25

LIVING

married and had two children. There

also came a point when I realised I

didn't want to work at the London

Stock Exchange anymore - I got a

job locally as a driver for a company

called Medicare. Due to the diabetes,

there was a limit to the size of lorry

I could drive but I ended up being

promoted to supervisor and worked

myself up to being the assistant

warehouse manager. Medicare at that

time had 30 shops and a warehouse

and I was in charge of the HGV

drivers and the warehouse."

New times

So new, job, new times, but still the

same diabetes 'kit'? Says Johnson,

the main problem I had back then

was the big glass syringe and steel

needles. I felt that I couldn't leave

the house without them in case I

needed an injection but I didn't like

carrying them around. Then I found

out about disposable syringes, which

were fantastic, so I just used those

and carried a bottle of insulin with

me. The disposable syringes had

much smaller, sharper needles and I

found injecting a lot less painful then

than before.

Up to this point, Johnson had

been attending Ashford Hospital,

seeing the same doctor who

diagnosed him. "I've always kept

aware of changes when it comes to

diabetes kit," Johnson admits, "I later

moved to the Royal Surrey Hospital

in Guildford as they had a bigger,

more dedicated diabetes clinic. After

22 years there, they suggested that I

try going on an insulin pump. At the

time, I was having multiple hypos per

day - I had fragile control and hypo

unawareness. I could quickly drop;

my wife would have to keep doing

blood tests on me if I was driving.

It was also difficult to do sustained

physical activity, but I did it - in fact I

was a martial arts expert!

"The first pump I went on was

a Medtronic model, then I moved

onto Roche's Accu-Chek Combo,

then I went back to Medtronic on

its MiniMed 640G. That had a lowglucose

suspend facility, but only

if you had access to Medtronic's

sensors as well, which I didn't. It

was good, I was more stable, but I

couldn't improve my HbA1c, which

used to hover around 10mmols/L.

This was mainly because I used to

keep my blood glucose at more than

8mmols/L in order to be safe driving

and to do exercise. However, if I got

stressed my blood glucose could

drop, sometimes from 10mmols/L

to 2mmols/L in about 20 minutes,

which proved to me that the brain

can use as much energy as the body.

I just didn't dare go low, it was too

unpredictable, it was dangerous, and

stressful in itself."

In 1982 the company Johnson

was working for was eventually

sold and he had the means and the

opportunity to work for a year in

Saudi Arabia setting up a distribution

system. "When I came back in

1984, I took a year out after the

Saudi job and taught myself how to

program computers, then I set up a

company back in England which put

in computer systems," he explains,

and points out that working in IT

was helpful for his diabetes control.

He says, "I'm nearly 70 years old

but I'm still into IT, which helps me

with my diabetes - I have no fear

of technology. I like to find out why

things work - or why they don't. So

the next thing, although I was stable,

I wanted to go onto CGM in order to

take me to the next level and improve

my overall control, specifically

my HbA1c.

"So, I self-funded Abbott's

FreeStyle Libre while on the

Medtronic 640G pump, from NHS.

On social media I had been following

a woman who [coincidentally] is

called Dana Lewis who has been a

leading advocate of creating a 'DIY

APS'* system. I was quickly using

the FreeStyle Libre, plus a bluetooth

attachment called the Miao Miao,

which you stick on top of the sensor.

It sent the data directly to an app on

my smart phone. This set-up worked,

it kept me in front of the curve. I

knew whether I was going up, or

going down, ahead of time - not

chasing highs or already being low

and reacting all the time. To be fair,

the Miao Miao could be a bit flaky,

it could drop out and it felt a bit

'Heath Robinson'."

An example screen from CamAPS FX smartphone app

Index

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  7. Spirit Pharmacy for people with diabetes, Insupen and Insujet insulin injection devices, CareSens an
  8. diabetes news, diabetes research news, diabetes information, diabetes news
  9. Abbott Freestyle Libre 2, Flash Glucose Monitoring, FSL2, Abbott Wellness Factory
  10. diabetes news, diabetes research news, diabetes information, diabetes
  11. insulin pump, Dana RS system, artificial pancreas, Advanced Therapeutics UK, CamAPS FX, Dexcom G6
  12. diabetes news, diabetes research news, diabetes information, diabetes
  13. Medtrum A6 Touchcare patch pump and CGM in harmony
  14. Medtronic Penny App
  15. : Medtronic MiniMed 780G System Automated for an easier way to stabilise glucose levels.
  16. Free online Desang diabetes magazine diabetes information
  17. NHS diabetes care
  18. Desang diabetes magazine, diabetes diet
  19. Air Liquide Healthcare UK Tandem t:slim insulin pump with Control IQ
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  21. Insulet Omnipod DASH insulin pump with insulin pods, podders, Omnipod DASH Personal Diabetes Manager
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  27. Diabetes technology education from Diabetes Technology Network DTN
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  35. Ascensia Contour Next One Diabetes blood test meters
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  38. Desang Diabetes Magazine, Making Carbs Count, carbohydrate counting for diabetes
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  40. Desang Diabetes Magazine, Making Carbs Count, carbohydrate counting for diabetes
  41. Desang diabetes kitbags, bag for diabetes kit
  42. Free online Desang diabetes magazine diabetes information

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