JDRF, INPUT, diabetes technology, access diabetes technology

LIVINGLIVING

Together JDRF and INPUT are linking world-class research

with expertise in diabetes technology access in order to

tackle individual, local and national access issues as well as

help more people gain access to diabetes technology, both

now and in the future.

www.jdrf.org.uk

intervention, I say that all Type I diabetes

control is off label by default. We are

always having to make judgements and

do things as we go along. It is down to

us whether we change our infusion sites

every three days, change or needles or

lancets per injection or finger prick. No

one does that, do they? We're all off label

in terms of not doing exactly what we're

told to do."

Manufacturers are very (and of

necessity) risk averse. But Slowey argues,

"We take risks every day, it is a matter

of how much risk. And it's our choice.

It comes down to what level of risk are

you prepared to take. You could argue

that DIY APS is less of a risk, because

you get better control. We are enabling

ourselves with real-time data. It makes

the triangle between blood test, decision

and enactment, in terms of an injection

or bolus."

Nor do you need to go the whole hog

and do DIY APS. You do not have to

our lives with diabetes easier? Let's

build it now! If it's good, it spreads. If it's

rubbish, it doesn't. Some people always

want to tinker, it's just inside us."

Looking back on his conversion to

pump therapy a year ago, Slowly says,

"I went from multiple daily injections to

fully settled on a pump within two weeks,

which is pretty quick. Soon after that I

started to 'loop', in other words, I made

my pump and CGM work together as a

DIY APS and I've never looked back."

Slowey is careful to point out that,

"This is only my story ¬- my view and

experience. Some people go into what

you might call 'extreme DIY', where they

cut open devices and fiddle with things,

like replacing batteries, or re-engineering

to make it rechargeable, extending the

life of sensors and so on. Clearly that

makes the new device 'off label' - it is

no longer the responsibility of the original

manufacturer that made it because

has been fiddled with and therefore

compromised. Having said that, in terms

of risking your control with this kind of

is no longer just been gathered, you are

able to harvest it and share it. Then you

can use data insights to help adapt your

treatment. Data can be converted into

visuals by the apps in order to help you

gain insights. You can analyse it to make

things like basal rate changes.

Slowey says, "As an example, a kid

could have a Libre with a Miao Miao, have

CGM software on his smartphone through

which he can share data with his parents.

On Apple it's called Spike, on Android it's

Tomato or X-Drip. Another example is

Dexcom via Bluetooth into a smartphone,

these then push the data to a NightScout

site which allows the information to be

shared with as many people as you like,

instantly. You can also generate reports

directly in the site which is very useful with

talking with your doctor say, since it saves

having to do any uploads as it's always

happening.

Make it yourself

Explains Slowey, "The DIY community

simply says, what do we want to make continued over

Index

  1. Desang Diabetes Magazine, free online diabetes magazine
  2. Medtronic Minimed 640G insulin pump
  3. Page 0003
  4. Accu-Chek Insight insulin pump for Animas users
  5. Diabetes UK Swansea Type 1 Tech conference November 2019
  6. Page 0006
  7. Home test HbA1c A1C Now
  8. Page 0008
  9. BD, Becton Dickinson, injection kit, injection technique, injecting insulin, injection education, fr
  10. Page 0010
  11. Dexcom CGM, continuous glucose monitoring
  12. Partha Kar, Desang diabetes news
  13. Page 0013
  14. Page 0014
  15. Desang Range of Diabetes Kitbags, Desang Classic Kitbag, Desang blood test diary
  16. JDRF Input Fusion, diabetes technology
  17. JDRF Input Fusion, Professor Partha Kar, diabetes technology
  18. JDRF Input Fusion, diabetes technology
  19. JDRF Input Fusion, diabetes technology
  20. Page 0020
  21. Kaleido insulin pump, patch pump, ViCentra diabetes
  22. Page 0022
  23. Trividia Health UK True Metrix blood glucose monitoring (BGM)
  24. JDRF, INPUT, diabetes technology, access diabetes technology
  25. Omnipod Insulet insulin pump with insulin pods, podders
  26. ABCD DTN Diabetes Technology Network, Flash Glucose Monitoring education programme
  27. Abbott Freestyle Libre, Flash Glucose Monitoring
  28. Desang Diabetes Magazine, free online diabetes magazine
  29. Page 0029
  30. Page 0030
  31. Ascensia Contour Next One Diabetes blood test meters
  32. Page 0032
  33. Page 0033
  34. Chef Anjula Devi, Manchester United, Indian food
  35. Chef Anjula Devi, Manchester United, Indian food, female indian chef
  36. Making Carbs Count
  37. Making Carbs Count white beans, Fenland Celery, carb counting for diabetes
  38. Accu-Chek Insight insulin pump for Animas users
  39. Accu-Chek Insight insulin pump for Animas users
  40. Desang Diabetes Magazine, free online diabetes magazine

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