JDRF's pathway to choice project for accdss to diabetes technology.

27

LIVING

each other, they do have common

ground. "We are not promoting one

product over another," says Nathan,

"What we needed were facts and

figures, not just opinions and sales

pitches. We had many patientreported

outcomes that needed to

be formalized."

Nice NICE baby

It seems to have worked. The very

recent news of updated NICE

guidelines show that someone has

been listening to the collective

message from patients, HCPs and

manufacturers in the diabetes sector.

The new guidelines can be stated

as being quite an extraordinary

result for people with diabetes and

their family, friends, associated

and carers. From the research,

consultations, surveys and audits

and some extraordinary leadership,

the argument was irrefutably made

that the cost of putting people on

technology sooner rather than later,

reduces the long-term cost of the

condition both for the individual and

for the healthcare system.

Also, as the new ICSs* replace

CCGs**, Pathway to Choice will

be able to show which are lagging

behind in terms of access to flash

glucose monitoring, CGM and

insulin pumps, i.e. no hiding behind

postcodes to make it a lottery.

Continues Nathan, "We needed to

know what the limiting factors are,

and how can we help overcome

them. Our mission is to share

best practice on how CCGs have

overcome obstacles, and if this is

replicable in other areas. At JDRF we

had three mission goals. We wanted

to do the research, we wanted to

accelerate access to technology

- including emerging treatments -

and we wanted to speed things up,

which we did through advocacy. We

also wanted to provide information

and support, which we will continue

to do."

Looking ahead

There's still much to be done. This is

a watershed moment, with the latest

NICE guidelines really paving the

way for many people with diabetes

being able to look forward to gaining

much better control - fewer hypos,

the chance of a full night's sleep

without worrying about having a

hypo (though you might get a few

alarms at first, until you really get

your control levelled out and 'get

on with' your shiny new tech) and

increased Time in Range (TIR) as well

as a lowered HbA1c.

But technology is not a cure,

insulin is not a cure (well, it's a cure

for not dying too promptly). There

are many more JDRF projects in hand,

thought these are more science-y

and costly than persuading CCGs

to put diabetics on already available

diabetes tech. Says Nathan, "Stem

cell and beta cell regeneration are

more costly to support, but while

technology can improve people's

HbA1cs, and increased time in range

[TIR] is not enough. We still need

to reduce the burden of living with

diabetes and reduce the levels of

diabetes burnout. There are health

economics to do with the cost of

living with Type 1 diabetes in terms

of money, but the real costs are to do

with living with complications and

quite probably living with depression.

We need to be more serious about

physical, mental and other costs."

www.jdrf.org.uk

Click on the

image to open the

documents

Index

  1. Free online Desang diabetes magazine, diabetes information
  2. Free online Desang diabetes magazine, diabetes information
  3. Free online Desang diabetes magazine, diabetes information
  4. Desang diabetes magazine, diabetes news
  5. insulin pump, Dana i system, artificial pancreas, Advanced Therapeutics UK, CamAPS FX, Dexcom G6
  6. Desang diabetes magazine, diabetes news
  7. Abbott Freestyle Libre 2, Flash Glucose Monitoring, FSL2
  8. Desang diabetes magazine, diabetes news
  9. Glooko diabetes data download software. Stay on track in between visits.
  10. Page 0010
  11. Air Liquide Healthcare UK, Tandem t:slim insulin pump with Control IQ
  12. Desang diabetes magazine article on new NICE guidelines April 2022 spur far wider access to diabetes
  13. Home test HbA1c, A1C Now Self-Check
  14. Desang diabetes magazine article on new NICE guidelines April 2022 spur far wider access to diabetes
  15. Medtrum Touchcare Nano Patch Pump and CGM
  16. Diabetes technology, CGM sensors, FreeStyle Libre, Dexcom One, Glucorx Aidex CGM
  17. Diabetes technology, CGM sensors, FreeStyle Libre, Dexcom One, Glucorx Aidex CGM
  18. New drugs to replace insulin, replacing or preserving beta cells in people with type 1 diabetes.
  19. New drugs to replace insulin, replacing or preserving beta cells in people with type 1 diabetes.
  20. Stem cells and gene editing for a cure to Type 1 diabetes.
  21. Medtronic MiniMed 780G System Automated for an easier way to stabilise glucose levels
  22. Page 0022
  23. Stem cells and gene editing for a cure to Type 1 diabetes.
  24. Desang Diabetes Magazine, free diabetes magazine, living with diabetes
  25. Desang Diabetes Magazine, free diabetes magazine, living with diabetes
  26. JDRF's pathway to choice project for accdss to diabetes technology.
  27. JDRF's pathway to choice project for accdss to diabetes technology.
  28. Desang diabetes magazine, diabetes diet
  29. Diabetes technology education from Diabetes Technology Network DTN
  30. Desang diabetes magazine, diabetes diet
  31. Insulet Omnipod DASH insulin pump with insulin pods, podders, Omnipod DASH Personal Diabetes Manager
  32. Desang diabetes magazine, diabetes diet
  33. Desang diabetes magazine, diabetes diet
  34. Desang Diabetes Magazine, Making Carbs Count, carbohydrate counting for diabetes
  35. Making Carbs Count, Carbohydrate counting for diabetes, Desang diabetes magazine
  36. Making Carbs Count, Carbohydrate counting for diabetes, Desang diabetes magazine
  37. Desang diabetes kitbags, bag for diabetes kit
  38. Desang Diabetes Magazine, free diabetes magazine, living with diabetes

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