LIVINGLIVING
I started dealing with enquiries by phone
and email and these have continued to
grow along with our website. I'm very
proud of our website! It's full of information
and gets lots of visitors. Most questions
are answered on the website, however
sometimes people want to talk about their
options on a one-to-one basis; it's a big
decision to make and people sometimes
like to talk through what they need, and
make sure the answers apply directly to
them."
Not all plain sailing
Jordan herself has had some trials and
tribulations. She had lipohypertrophy
(the localized accumulation of fat tissue).
"My DSN suggested I go on a pump
and then I started on a huge journey of
discovery. I noticed a difference in control
straightaway but a year after getting my
first pump I started to have problems
with my infusion sites. I felt guilty, that
maybe I'd become complacent with my
control, but it turned out I had problems
with my subcutaneous tissue - it was not
absorbing the insulin from infusion sets.
"I read about the DiaPort device
"
The new NICE guidelines NG17 and NG18 are really
great news. They basically allow the NHS to provide
CGM, although the funders are under no obligation to
do so, unlike with insulin pumps.
in 2004 and when I made enquiries it
turned out there was only one clinic
in the country that did it at the time,
which was Bournemouth, so I had to be
referred there (I live in Essex). I'm now on
the second-generation DiaPort model,
actually my third DiaPort unit. I went on
this one in 2013, and all is well today, I'm
pleased to say."
The time is now
From all the enquiries INPUT receives,
along with being part of the diabetes
online community, Jordan can see that
there are a few things that people care
about right now. She says, "First, there's a
feeling that people believe there will never
be a cure because diabetes is too big an
industry now. But I go to conferences and
congresses and I can see the passion of
the researchers and developers -- many